Are you familiar with any of these? They are but a miniscule part of the world’s 7000 rare diseases.
- Abdominal chemodectomas with cutaneous angiolipomas
- Abdominal cystic lymphangioma
- Aberrant subclavian artery
- Abidi X-linked mental retardation syndrome
- Ablepharon macrostomia syndrome
- Abrikosov’s tumor
Rare Disease Day is meant to be celebrated on February 29th, leap year; but of course leap year is rare… and so are these diseases. Sometimes called orphan diseases, they affect a very small percentage of the world’s population.
Diseases like Aids, Cancer or Heart often have fund raisers. But it’s hard to raise money for something no one has ever heard about. Though the ailment may be rare, patients and caregivers suffer just like those with other diseases.
Just so you know…so perhaps you can help.
Your thoughts—how rare, how beautiful! God, I’ll never comprehend them! I couldn’t even begin to count them— any more than I could count the sand of the sea. (Psalm 139:17, 18, MSG)
Prayer – Father, you understand rare diseases and their sufferers more than we possible can, but we ask that you show us how to help where we are. Amen